#1110: “Dudebro won’t stop bugging me about another dudebro. I JUST WANNA DO MY JOB.”

Captain Awkward

Behind a cut for #MeToo reasons.

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Our Recent Study on the Overlap between Autism and Ehlers-Danlos Syndrome/Hypermobility Spectrum Disorders

Science Over a Cuppa

Although much of my research efforts to date have focused on the genetics of autism, over the last year or so I’ve turned a significant part of my attention to a particular group of connective tissue disorders (CTD) and their overlap with the autism spectrum. The CTDs I’m referring to are known as Ehlers-Danlos Syndrome (EDS) and the closely-related Hypermobility Spectrum Disorders (HSD).

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To be frank, much of my interest in this area has stemmed from my own experience and recent diagnosis with an HSD, which has put me in contact with a number of fantastic online support communities on Facebook for EDS/HSD and its comorbid issues like postural orthostatic tachycardia syndrome (POTS) and mast cell activation syndrome (MCAS). In coming to know these communities and learning from their vast stores of knowledge, I also began to notice that there was a lot of talk about autism on…

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Why I Don’t Recommend Floortime

Erin Human

In many conversations about autism therapies, I’ve seen Floortime recommended as an alternative to ABA (Applied Behavioral Analysis). I’ve frequently spoken up in those conversations to caution people about Floortime, giving my elevator pitch for why I don’t recommend it. That elevator pitch/TLDR version goes something like this:

Though the real-time practice of Floortime can be a much kinder therapy with some aspects that can be beneficial to autistic children, the core concept and underlying philosophy are still highly neuronormative (holding neurotypical standards as the norm), biased against autistic development as equally valid, and include some outright harmful techniques.

I’ve long wanted to write a full blog post reviewing Floortime, because my critique is a bit nuanced and I completely understand why people would find Floortime appealing based on a cursory description of the practice. I’m also guessing that people have seen or participated in Floortime sessions that seemed innocuous…

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On becoming disabled / politically disabled

Liminal Nest

[TW: this post discusses medical trauma]

There are a lot of forms I have to fill out about when I “became” disabled. These are government forms, and they relate specifically to when I officially became unable to produce “substantial gainful activity” and a lot of other very complicated things. I am so used to having to produce this number for bureaucracies and on forms and every time Medicare asks me something that I can spit it out (mostly) without thinking, unless I have aphasia in which case it takes me longer to come up with the words.

Aphasia me can’t come up with the words for the year, so I have to work around them. I was twenty. I was born in another year, so if we add those two numbers together, we get the year. It was autumn. I look at someone near me, eyebrows raised. This…

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Review of TO SIRI WITH LOVE by Judith Newman

elizabethroderick

I’m an autistic author, and I urge you to read the critical reviews written by autistic people before you buy this book. Even if you do decide to buy it, it’s important that you know that autistic people have agency, feelings, intelligence and inner life…because Ms. Newman portrays us as thoughtless, helpless beings with no empathy.

I borrowed a copy of this book from a friend, so I could read it and opine on the controversy without financially supporting an author I’d heard was horrible to autistic people. However, Amazon is now not allowing reviews by people who don’t have a verified purchase through Amazon. I currently live on only a few hundred dollars per month (on most months), but I purchased a copy just so I could leave a review on Amazon. It is so important that autistic people endeavor to make themselves heard on the issues raised in…

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as you are

“‘as you are.’ says the universe.
‘after…’ you answer.

‘as you are.’ says the universe.
‘before…’ you answer.

‘as you are.’ says the universe.
‘when…’ you answer.

‘as you are.’ says the universe.
‘how…’ you answer.

‘as you are.’ says the universe.
‘why…’ you answer.

‘because
you are happening now.

right now.
right at this moment

and
your happening
is beautiful.

the thing that keeps me alive
and
brings me to my knees.

you don’t even know how breathtaking you are.
as you are.’

says the universe through tears”

 

—Nayyirah Waheed, “as you are | you are the prayer” (Nejma)

in this time for new year’s resolutions, let us take a moment to remember how revolutionary it is to know we deserve love. unconditionally. right now, as we are.

may we all feel this profound freedom someday.

happy new year